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| Ennio and I in Florida (March 2016) |
Maar gelukkig ziet het nieuwe jaar dus er een beetje lichter uit!
Voor de archieven: een overzicht van de belangrijkste data van 2016.
For the archives: an overview of 2016 important dates.
Since January 2016:
Monday: 5:30pm – 8:30pm ABA (Familias First)
Tuesday: 5:30pm – 8:30pm ABA (Familias First)
Wednesday: 8:00am – 8:30am : OT (LAUSD); 8:30am – 9:00am: Speech Therapy (LAUSD);
4:45pm – 6:15pm: SEDI – FloorTime/DIR at home (PCDA)
Thursday: 1:15pm – 2:30pm: SEDI – FloorTime/DIR in school (PCDA)
February 24: Psychological Observation in preschool by Garine Melconian, LAUSD School Psychologist
April 6: Parent-Teacher conference Ennio
April 9: Psychological Assessment Ennio at Eagle Rock Elementary School by Paul Vogel, LAUSD School Psychologist
April 20: IEP meeting at Mt. Washington Elementary with PKIT Toni Mazaros, Speech Therapist Jamie Falcon, Occupational Therapist Jose Estrada, Special Ed Teacher Yvonne Porter, School Psychologist and Assistant Principal Silvia Collins. We do not like how the meeting went and do not want to sign the IEP document
April 27: IPP meeting with new Regional Center coordinator
May 16: meeting with Special Education attorney Mark Woodsmall
May 18: Phone conference with Toni Mazaros; meeting with Yvonne Porter and Silvia Collins. We sign a document that we disagree with the IEP;
May 25: Phone conference with Tobi McKay of LAUSD Special Education Division.
May 31: Follow-up phone conference with Tobi McKay. We come to an agreement!
June 8: Meeting with Ms. Gravino, principal
June 9: Phone conference with Bridget Franklin of LAUSD to finalize Ennio’s implementation IEP (he will get block of 150 hours of Behavioral Intervention (9000 minutes) for first 6 weeks of school.
July 7: first time Social Skills class at PCDA
Summer break: family vacation in Iceland and kids in Germany from July 21 until August 12.
August 15: Meeting with Ms. Sy, Ennio's new teacher
August 16: First day of school. BIC team: Gloria Whaley and Neil Lewis
September 23: Meeting with Neil/Gloria
September 28: IEP meeting with LAUSD specialist Kelly Caudillo – the meeting is recessed until October 13 to add academic goals. In the meantime, the behavioral intervention should gradually fade out.
October 13: 2nd IEP meeting. Due to a miscommunication, Ennio received no BI over the past 2 weeks. His teacher reports that, to her surprise, he did well in the classroom! No more full-time aide in classroom. No present need for FBA (functional behavior assessment)
October 13: Social Skills training starts at PCDA from 5 to 6pm each week (no more SEDI which had been put on hold since summer)
October 27: USC Social Play study for children with autism
November 9: Parent-Teacher conference Ennio
All of this combined with Dutch classes with Juf Karin (Lily, 2 hrs/week)
and piano class with Monica (Lily, 30 min/week)
and SoccerShots with coach Alex (Ennio, 30 minutes/week)
and karate classes (30 minutes each child once or twice/week)
and swim classes in September-October (twice/week for each child)
and yoga class in September-October (Lily, 1 hour on Fridays)
and Girl Scouts (Lily, 1-2 times/month)
and Dutch School on Saturday mornings (both kids)!
Okay, okay, I admit, it's too much! That's why we stopped piano, soccer and karate when summer started (the kids were away most of the summer) and we have not resumed these classes since. We will see what the new year will bring... although, it will be hard to fit them back in now that I'm back to working full-time (since November 1)! I do love the karate classes for the kids, so we will do our best to add that to the schedule!
Right now, it looks like the 2017 weekly schedule will be as follows:
Monday through Friday: school from 8:06am until 2:34pm; early dismissal on Tuesday at 1:34pm; afterschool care at Carlin G. Smith Rec Center until Marcus or I pick up the kids (around 5-5:30pm unless Ennio has therapy or Lily a class, then Marcus picks up early)
Therapy:
Monday: FREE (yay!)
Tuesday: 2:00pm – 5:00pm ABA (Familias First)
Wednesday: 30 minutes Speech Therapy every 2 weeks (in school - LAUSD);
Thursday: 5:00pm – 6:00pm: Social Skills at PCDA;
Friday: 30 minutes OT every 2 weeks (in school - LAUSD)
Overall, I am very happy that Ennio is getting all this help, but I can't help that it often feels like a burden, and that it makes me not enjoy his childhood as much as I should :-( And then I feel guilty...
I have to remind myself to enjoy the small things, the smiles, the happy moments,... And to tell you the truth, they're not happening during therapy, but they are when we are traveling together. We had such a good time together over the summer. Ennio is often still talking about it, he wants to see the photo albums, he is finding the places we went to on Google Earth, he remembers so much! Maybe we should start some type of travel therapy :-) :-) :-)
To end on a good note, here are some great Ennio travel memories I want to treasure forever:
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| Happiest when he's at the airport!!! |
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| Happy at the farm! |
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| Happy near the water! |
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| Happy on the road! |
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| Happy here... Finding his own way :-) |
